Here's everything you need to know about this rare disorder.

By Faith Brar
Updated: February 27, 2019
Photo: Ian Gavan / Getty Images

Jameela Jamil, known for both her role in The Good Place and for calling out celebs for unhealthy endorsements, recently shared a video of herself stretching her cheeks on Instagram with the caption: "I'm fine." While it seemed like she was just goofing around at first, a fan commented on the video asking if she had Ehlers–Danlos syndrome (EDS), a rare connective tissue disorder that causes extra-elastic skin and overly flexible joints. Very subtly, she responded, "Indeed," confirming her diagnosis.

This seems to be the first time that Jamil has said anything about having EDS, but she has previously drawn attention to her symptoms. Last year, someone asked "what the fork" was happening in a photo of her hyperextending her elbow, to which she responded: "My arm is being extremely sexy!" (Related: Jameela Jamil Wants You to Know That She's More Than Just a Hater for Celebrity Diet Endorsements)

So, what exactly is EDS, you might ask? Turns out, it's a term used to describe a group of connective tissue disorders that all have their own unique symptoms, according to the National Institutes of Health. To be exact, there are 13 known subtypes of the disorder and they all affect areas of your body that have connective tissue-your skin, muscles, tendons, ligaments, blood vessels, and organs.

While some people might experience mild loose skin that isn't a major cause for concern (which seems to be the case for Jamil, at least based on her IG caption), others can have more visually apparent symptoms like model Sara Geurts. Her EDS is severe enough that it causes her skin to appear fragile and wrinkled-and she's chosen to use photos of her skin to raise awareness about the rare condition. EDS can also manifest in ways that are more complicated, and that can lead to life-threatening complications, like unpredictable tearing of organs like the heart, blood vessels, and intestines-and the uterus during pregnancy.

Unfortunately, there's currently no cure for EDS. Treatment, which usually involves physical therapy and high-dose painkillers, is often used to simply relieve symptoms to prevent further complications, according to Mayo Clinic.

As of right now, it's unclear what subtype of EDS Jamil might have, but at the very least she deals with both loose skin and very flexible joints. Given her candidness on social media, it's likely Jamil will share more details about her condition in the future.

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